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Co-Founder BIPOC Equity Agency
I am a 37 year old marketing specialist turned Long COVID Advocate & Co-Founder of BIPOC Equity Agency, from Northern Virginia. Recovering from a March 2020 mild COVID-19 infection that lead to disability. Due to my severe Long COVID symptoms, I have had to seek care at local emergency rooms dozens of times and have been admitted for care for a total of over 30 days.
After being threatened with arrest by hospital staff for seeking medical help during an episode of dangerously low oxygen and high heart rate, I became a health advocate to help others receive proper care, which led to my role in the COVID-19 Long Haulers Act, where I spoke alongside the bills sponsors Rep. Don Beyer and Rep. Jack Bergman. I have also met with Rep. Ayanna Pressley's and Senator Tim Kaine's teams as they drafted Long COVID legislation.
I recently gave my sworn testimony on Capitol Hill, invited by Congressman Clyburn about my experience with medical racism and the need for resources for Long COVID at the Select Subcommittee on the Coronavirus.
Currently, I am a Board member of SolveME and Wail of A Tail Productions. I also am a Long Covid Alliance core steering member and on the advisory board of Consuli.
I am currently working on a number of Long COVID and ME/CFS projects including diversity, equity and inclusion initiatives in research and healthcare through BIPOC Equity Agency. to curate more diverse patient populations in Long COVID studies. I am also working with Long COVID researchers to help generate insights into therapies for Long COVID and creating informational content for longhaulers on Hugo Health Kindred - a Long COVID community.
©2020 by Cynthia Adinig
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