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Long Covid Resources

Having Long COVID can be overwhelming. So I have developed a list of resources along with guides to help you or someone you know with Long COVID. I have compiled a list using my extensive experience as a patient navigating Emergency care, specialist visits and even in-patient hospital stays.  To go directly to my Emergency Room Guide click the button below.

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Support Groups

Having a support group as you recover is an integral part of maintaining mental and physical health when you have long COVID. Not all social media groups are created equal. Here's a list of some good ones to start with.  


Associated Illnesses

There is so much we don't know about long COVID but we dont have to reinvent the wheel. Many of our symptoms fall into a few known syndromes or illnesses. Here is a list of websites that will give you trustworthy information. 

A Young Woman Writing

Medical Care Guides

This is your guide to getting the BEST care during your long covid journey. Including qualities of a good primary care physician,  ow to get faster appointments and getting access to lab work and tests in the Emergency room. 

Bookshelf Broadcast

Innovative Research

Long COVID Research is being conducted in many areas. Studies ultimately help advance the ability to treat, evaluate and diagnose long COVID symptoms. This list can help you find innovative studies and therapies. 

In a Meeting

Advocacy Groups

Sometime during your long covid journey, you may want to get involved in advocacy. However, there's a lot of advocacy groups and organizations that formed recently. Here is my list of some groups to check out.

Confident Woman

Long Covid Leaders

Want to get in touch with some of the prominent leaders in long covid advocacy? I've compiled a list along with links to their websites or social media, along with what makes them special, so you can reach out to them. 

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Did I Miss Something?

Have a resource section that you think belongs here but you dont see, or part of a group or organization that you think deserves to be added to my list?  Contact me and let me know!