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More About Me

I am a 36 year old marketing specialist, turned Equity Policy Advisor and Long Covid Advocate from Northern, Virginia. I am slowly recovering from a March 2020 mild COVID-19 infection that lead to severe disability and life threatening illnesses. Due to my unique Long Covid symptoms, that lead to complications from severe starvation,  I have had to seek care at local emergency rooms over 30 times, also admitted for care multiple times for a total of around 30 days.

 

In September 2020, after being threatened with arrest by Emergency Room hospital staff while seeking medical help during an episode of dangerously low oxygen and high heart rate. I decided to become a medical equity advisor and long covid advocate so that marginalized communities could receive proper care in the future. I worked alongside Long Covid Alliance to guide legislative language for the Covid 19 Long Haulers Act and spoke at the press conference alongside the bill's sponsors. 

 

I have been  featured in TIME magazine alongside other well known medical advocates; Wilhelmina Jenkins, Ashanti Daniel, and Chimére Smith. Along with a profile of my Long Covid journey in the Washington Post and on Newsy, along with being featured on Long Covid Advocacy spaces such as MakeGoodTogether. In those interviews, I discuss the overt and implicit bias I have faced as a Black woman seeking life-saving healthcare for Long Covid.

 

I also speak about my experience of trying to balance being chronically ill while raising my 6 year old son Aiden Adinig, who became a Mensa Member at 5 years old, during the height of my decline in health from long covid. I have been featured alongside him on major media platforms such as DailyMail. He has also been featured on 60 Second Docs our local news. He is internationally known as a prodigy in multiple areas and I continue to homeschool him even as Long Covid continues to render me homebound and sometimes bedridden.

I have recently been a part of Long Covid and ME/CFS projects, including planning and speaking at an extremely successful Invisible Disability panel with Massachusetts Department of Public Health. I also was a panelist at the 2021 IACFS/ME Virtual Conference. I also am a Long Covid Alliance core steering member. I also am a co leader of the first BIPOC Long Covid x ME/CFS support group. I am well known in the long covid community for working to intervene in real time to help steer long haulers to proper care in the Emergency Room. I have recently written a digital Emergency Room Guide for longhaulers of color, to increase their access to care.

Before my journey as a long hauler disrupted my ability to work, I had the great fortune to work on some truly inspiring organizations. I believe in working together for the good of humanity in as many ways as possible. WebStyleGurus, the graphic design company that I cofounded 7 years ago has worked with celebrity and high end companies. The focus being on mostly minority owned and operated non profit organizations and events. Since its inception 6 years ago, my kpop clothing company that I founded, KPOPSEOULSHOP has been a leader in diversity and inclusion. A portion of the proceeds go to raising awareness of mental illness and helping to end world  hunger. For the past 7 years I was happily serving in multiple capacities at my local church, Grace Community Church, with 2 of those years, as head of the Hospitality Team. Grace Community Church is well known for its efforts to help ease poverty, racism and hunger in the community, which is why it quickly became one of my favorite places to serve as a volunteer.

 

For the past 8 years I have been a volunteer at EPW Breast Cancer Foundation, a Maryland based charity that provides mammograms and other services to low income, minority women in the community. For the past 4 years I have worked on political campaigns with minority candidates. I have also worked as a volunteer at Rita R. Church Foundation for the past 4 years, fundraising for the Rita R. Church Community Center and bringing awareness to its services in an underserved Baltimore community. Through those efforts I received a community service award in 2017.